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02-28-2007, 06:37 PM
| | |  J.K. Rowling fights for MS patients
J.K. Rowling, patron of the MS Society Scotland, spoke out yesterday against the Scottish Medicines Consortium’s decision to ban use of the drug Tysabri to treat multiple sclerosis (MS), due to its high cost. Quote:
I know from personal experience that MS can have a devastating effect on everyone who comes into contact with it. My mother suffered terribly with MS and it was so frustrating that there was little or nothing doctors could do to help her.
If a drug can help tackle MS - particularly the very aggressive type of relapsing MS we are talking about - it should not be ruled out because of cost alone.
Once again, decisions about treatment are being made by accountants rather than clinicians, and I hope MSPs will speak up on behalf of the thousands of families affected by MS across Scotland.
Tysabri, which costs £15,000 per year, is prescribed as a last resort for patients who have not had success with any other form of treatment.
According to Mark Hazelwood, director of the MS Society Scotland: Quote:
People affected by MS in Scotland should have the same access to treatments as their counterparts in Ireland, Germany, the U.S. and elsewhere.
More that 10,000 people are now taking this drug worldwide, but we are barely out of the starting blocks.
Ironically, Scotland has the highest rate of MS worldwide, with one in 500 people afflicted with the disease. Nearly 1,000 of them could potentially benefit from Tysabri.  | |
02-28-2007, 06:43 PM
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#2 (permalink)
|  Luff’s on JamesPlimpy
Join Date: Feb 2006 Location: UK
Posts: 1,129
Fifth Year |
Go Jo for speaking out  first to post
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02-28-2007, 06:53 PM
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#3 (permalink)
| | Nogtail
Join Date: Jul 2006 Location: LOST ;p
Posts: 319
Hogwarts RPG Name:
Astrid Klein
First Year
Ministry RPG Name:
Ashley Klein
Magical Creatures |
im rite behind ya!!!!
yay!!! second to post!  | |
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02-28-2007, 07:29 PM
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#4 (permalink)
| | Kneazle
Join Date: Jul 2003
Posts: 3,177
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Go Jo ! | |
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02-28-2007, 07:41 PM
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#5 (permalink)
| | Thestral
Join Date: Mar 2006 Location: The Golden Coast
Posts: 35,265
Hogwarts RPG Name:
Bueller B. Betsworth
Fifth Year | Jor!Jor! Queen Hermidana
Good For Jo. I'm glad she is letting her voice be heard. I hope that everything turns out okay. | |
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02-28-2007, 07:42 PM
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#6 (permalink)
| Portuguese Moderator Thestral
Join Date: Feb 2004 Location: Neverland
Posts: 39,943
Hogwarts RPG Name:
Margaret Jacqueline Atkinson Morris
Fifth Year | Potter’s Princess A+ FangGirl
It's great to know that Jo's acting for a cause ^^ I wish her the best of luck with it!
__________________ I gotta go back to the muggle world,
they're gonna try and tell me this wasn't, that none of this happened,
but you know what? It was real. It did happen.
We spent time here. We made friends here. That's a part of us.
Cause Hogwarts is bigger than any of us, of any of it's founders,
and it's going to be around long after we're gone.
Maybe we'll see our kids come here one day.
That's the thing about Hogwarts.
No matter how long you're away from it, there's always a way back. | |
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02-28-2007, 07:51 PM
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#7 (permalink)
|  DA's Ultimate FanHinkypunk
Join Date: Apr 2005 Location: living in the burrow while I try to find a teaching job in PA, USA
Posts: 889
Sixth |
I couldn't agree more!!! Great of her to use her fame to help out such a great cause!! Best of luck with it!! This just further illustrates why JKR is sooo greaat!!
__________________ 
You too can help stop Voldemort!
Join the DA today!!! | |
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02-28-2007, 07:56 PM
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#8 (permalink)
| | Skrewt
Join Date: Apr 2006 Location: Lancaster, Uk
Posts: 1,286
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Go Jo!!! Nicola
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02-28-2007, 07:56 PM
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#9 (permalink)
| | Erumpent
Join Date: Aug 2005 Location: Teh Internets
Posts: 13,006
| Lady Bernkastel - Witch Of Miracles More Posts than Sense
I agree with Jo! Its great she is standing up for people and using her fame to help others  Who cant ignore the great Rowling? I wish her good luck with her cause  | |
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02-28-2007, 07:59 PM
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#10 (permalink)
|  I mod Cauldrons 0_oMy ImiSphinx
Join Date: Aug 2004 Location: =O I have a location
Posts: 22,973
Hogwarts RPG Name:
Emmett Crosston
First Year |
Thats great to hear she's sticking up for those with MS again. I wish her all the best.
__________________ Graphics made by: Thumper
Zoe loves Imi the most! ♥ | |
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02-28-2007, 08:05 PM
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#11 (permalink)
| | Basilisk
Join Date: Aug 2006
Posts: 48,744
 x2  x3
Diagon Alley Employee:
Artemis J. Chosen
Gringotts Head Curse-Breaker | Fortress of Brilliance ღ Mommy Quad ღ Rabid Roaster
Go Jo!!! 
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02-28-2007, 08:09 PM
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#12 (permalink)
| | Lethifold
Join Date: Oct 2006 Location: England.
Posts: 22,286
| I'M A GLEEK! | | Rupert & McAvoy ♥ I'm a Cutie Patootie
Jo is amazing! 
__________________ 
'Your girlfriend is not more important
than the whole universe!'
'SHE IS TO ME!' | |
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02-28-2007, 08:17 PM
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#13 (permalink)
| | Faerie
Join Date: Nov 2005
Posts: 3,959
Ministry RPG Name:
Padme Akret
Magical Creatures |
Way to stand up to it Jo!
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02-28-2007, 08:30 PM
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#14 (permalink)
| | Basilisk
Join Date: Apr 2003 Location: Citi Field
Posts: 45,196
Graduated | David Wright lover TV Show Master
it better not be banned!! i need all the meds i can get!!
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02-28-2007, 08:43 PM
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#15 (permalink)
| | Ghoul
Join Date: Aug 2004 Location: at the dance studio
Posts: 563
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its amazing that Jo's speaking out for stuff like this. It shouldnt be banned just becuase of its cost!
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02-28-2007, 08:55 PM
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#16 (permalink)
| | Faerie
Join Date: Sep 2006 Location: UK - I think?
Posts: 4,170
Hogwarts RPG Name:
Adelpha Charles
Fourth Year
Ministry RPG Name:
Apphia Clarkson
Department of Mysteries | Peek-a-Boo Reporter
Go Jo!!! | |
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02-28-2007, 09:41 PM
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#17 (permalink)
| | Troll
Join Date: Nov 2006 Location: Hogwarts School of W
Posts: 4,515
Hogwarts RPG Name:
Mindy Song
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I agree here. I feel very sorry for Jo, since her mother died with such pain left for her and the doctors.
__________________ †Luna Lovegood,Evanna Lynch,J.K. Rowling, Sirius Black,Gred & Forge,Dumbledore's Army,Harry Potter,Draco Malfoy,Sibyll Trelawney†
†{Mindy Song, First Year Ravenclaw} {Emma's Twinnie Forever!} Luna and Nargles {Thanks to Tink for the siggy!} {Believe in yourself.}†
 A true friend | You're here 'til the end
†Hermione Granger,Ronald Weasley,Albus Dumbledore,Severus Snape,Neville Longbottom,Minerva McGonagall,Extra Characters,Ginny Weasley,Fleur Delacour† | |
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02-28-2007, 09:49 PM
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#18 (permalink)
| | Erumpent
Join Date: May 2004
Posts: 13,395
| Ultimate Potterite Original original
It's great the Jo cares so much. She's really an absolutely wonderful person! | |
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02-28-2007, 10:02 PM
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#19 (permalink)
| | Hippogriff
Join Date: Sep 2004 Location: TeXaS!!! UsA!!!
Posts: 3,462
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Thank you Jo!
__________________
~smile like you mean it~ the killers~ | |
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02-28-2007, 10:06 PM
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#20 (permalink)
| | Jarvey
Join Date: Jan 2007
Posts: 141
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Way to go Jo!!!!
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02-28-2007, 10:10 PM
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#21 (permalink)
| | Kappa
Join Date: Dec 2006 Location: In Wonderland,with Mad Hatter
Posts: 972
Second
Ministry RPG Name:
Janelle singleterry
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Not only is she talented but really nice to....I love her 
__________________
Be ~~>LIE<~~eve......Believe??  | |
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02-28-2007, 10:37 PM
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#22 (permalink)
|  McG's PetFaerie
Join Date: Feb 2006 Location: At band most likely.
Posts: 3,959
Hogwarts RPG Name:
Nemia Havishaw
Ministry RPG Name:
Pippa Havishaw
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Wow Jo!!! GO JO!!! | |
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02-28-2007, 10:57 PM
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#23 (permalink)
| Keeper of Ginny's AttitudeBatty Bella Griffin
Join Date: Dec 2005 Location: Dancing in the rain.
Posts: 9,238
Hogwarts RPG Name:
Tara Elizabeth Kensington
Ministry RPG Name:
Tessa Maria Kensington
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wow go jo!
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02-28-2007, 11:27 PM
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#24 (permalink)
| | Bicorn
Join Date: Feb 2007 Location: DRFC,EWFC,RGFC,TFFC, SBFC, DAFC
Posts: 1,774
Hogwarts RPG Name:
Jill Garza
Third |
Wow, go Jo! That's great.
__________________
[SIGPIC][/SIGPIC] | |
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02-28-2007, 11:43 PM
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#25 (permalink)
| Forever Refreshing Erkling
Join Date: May 2006 Location: Next to Joe Jonas!
Posts: 8,345
Hogwarts RPG Name:
Elijah Alexander Navalta
Ministry RPG Name:
Evangeline Mannitiquette
Department of Mysteries |
I agree with her, though. I mean... they're going to give up lives just so they can save money. It's stupid!
Go JK!
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